Mother with rare ALS touts 'miracle drug' that has stopped her disease
Raziel Green, 52, an active runner and mother of two, was diagnosed with a rare form of ALS in 2017. Since starting a ...
This woman has ALS. So did 22 of her relatives. What she wants you to know.
While 22 people seems like a lot, it sounds right for people with a genetic form of ALS. "If you're carrying one of these ...
Regina woman is living proof of 'breakthrough' ALS drug now approved in Canada
A Regina mother who was one of the first ALS patients to test a new treatment is now celebrating its accelerated approval in ...
IEEE Spectrum on MSN12d
New Brain Tech Gives Voice to ALS Patients
A myotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that affects muscle control, and most ...
pharmaphorum3d
Biogen gets FDA approval for ALS drug Qalsody
After much deliberation, the FDA has granted accelerated approval for Biogen’s tofersen for an ultra-rare form of the neurodegenerative disease amyotrophic lateral sclerosis, associated with a ...
Medindia21d
QALSODY™ (tofersen injection) Receives Conditional Marketing Authorization from Health Canada as the First ALS Treatment Targeting a Genetic Cause
SOD1-ALS is an ultra-rare, genetic form of ALS, comprising approximately 2% of people with ALS.4 "We're thrilled to bring forward QALSODY as a treatment for individuals living with SOD1-ALS ...