Epidermolysis Bullosa (EB), or butterfly disease, affects 1 in 50,000 people, causing fragile skin that blisters easily, often likened to the delicacy of butterfly wings.

DEBRA Research and LEO Pharma enter strategic partnership to advance treatments for rare skin diseases: Munich, Germany Thursday, February 6, 2025, 10:00 Hrs [IST] DEBRA Research ...

Argyria is caused by a buildup of silver in the body, which discolors the skin. Symptoms: The main symptoms of argyria are the skin developing a bluish-gray or gray tint, the fingernails growing ...

Chase Malackowski was diagnosed with Ewing's Sarcoma at eight years old. After trialing a "single patient Investigational New Drug" (IND) which allowed him access to BPM31510, Chase has been ...

Skinvisible granted Quoin an exclusive, royalty-bearing license to its technology for use in select rare skin diseases and for the right to use its proprietary formula for Netherton Syndrome.

This case study explores a rare overlap of hidradenitis suppurativa and porokeratosis, as well as highlights the unique ...

rare skin diseases, rare metabolic disorders, and rare respiratory diseases. In addition, Relief is commercializing several legacy products via licensing and distribution partners. Headquartered ...

Jennifer’s heartbreakingly honest interview to educate women about this rare breast cancer with no lump or tumor went viral in a 2017 WFAA Original.