In the Duchenne community they say time is muscle. So the clock is always ticking for the loved ones of those suffering with ...

Verena (special friend Daniel Ray), age 27 Mom, us children decided to each write a birthday message to you for your 54th birthday, May 22. Sitting here, dozens of things pop into my head on what I ...

A rare and fatal form of muscular dystrophy has long posed a devastating diagnosis for children, primarily affecting boys.

Mom, us children decided to each write a birthday message to you for your 54th birthday, May 22. Sitting here, dozens of ...

Jonathan Strober, MD, explains the initial presentation of myasthenia gravis in a pediatric patient population and why initial diagnosis for these patients can be challenging.

Lovina turned 54 years old on May 22. Her children decided to write a tribute column for her. Each child will write a few ...

Families began receiving calls from doctors last week to arrange treatments for new Givinostat drug after a campaign by the ...

gstt.sthames.nhs.uk Although bladder function is thought to be unaffected in Duchenne muscular dystrophy, 46/88 boys interviewed had urinary problems. Nine underwent video urodynamics, showing in ...

Developed by Sarepta Therapeutics, Elevidys is a one-time, intravenous treatment that uses adeno-associated virus (AAV) ...

Taevion Norris' senior year was suddenly interrupted in March due to heart failure, forcing him to spend the tail end of his final year of high school in the hospital.

Leah Messeropened up to OK! about rumors the show is ending, her relationship with her former Teen Mom 2costars and an update ...

"I'm so happy because I thought he wasn't going to make it," Taevion Norris' mother said at the graduation ceremony.